In the News
PAUL RUBY FOUNDATION FOR PARKINSON’S DISEASE TO MERGE
– Davis Phinney Foundation to become sole beneficiary of Sub-5 Ride for Parkinson’s –
BOULDER, CO, April 3, 2014 – More than 50,000 new cases of Parkinson’s disease are dia
gnosed each year in the U.S., and an estimated 1.5 million Americans are living with the disease. Today, one of the country’s preeminent nonprofit organizations devoted to Parkinson’s, the Davis Phinney Foundation (DPF), along with the Paul Ruby Foundation for Parkinson’s (PRF) jointly announced their plans to join forces later this year.
Said Paul Ruby, Chicago hotelier and Parkinson’s advocate, “I am very excited about the potential impact the partnership will have. The Paul Ruby Foundation has focused primarily on funding research. Though I’m confident a cure will be discovered, it’s vital that we help optimize quality of life now for people suffering with Parkinson’s. The Davis Phinney Foundation has championed this mission, and I proudly support their efforts. I can’t imagine a better fit than the Davis Phinney Foundation to continue what our grassroots organization has started. Davis is a former professional cyclist, and the Sub-5 Ride has become a huge fundraiser with potential to grow. The cycling connection will be a boost with regard to credibility, marketing and attracting sponsors.
The organization will operate as the Davis Phinney Foundation. “This partnership embodies the collective spirit of the Parkinson’s community,” said Eileen Mullin-Gasteier, DPF National Vice President of Development. “The collaboration with the PRF and the Sub-5 Ride team will allow us to significantly broaden our impact and help more people living with Parkinson’s to live well today. Paul’s legacy will be honored as the efforts of the PRF transition under DPF. Revenue generated by future Sub-5 Rides will exponentially increase our ability to fund research and to develop best-in-class programs that support quality of life for people in Illinois and across the US that are living with Parkinson’s. Our goal is for everyone who can benefit from our programs to have access to them, wherever they are.”
The DPF has invested more than $2 million in research since its inception in 2004. Since 2007, the PRF has raised more than $700,000 to fund Parkinson’s research at Northwestern 2
University’s Parkinson’s Disease and Movement Disorders Center (PDMDC). The DPF is committed to continuing the PRF’s relationship with the PDMDC. Dr. Tanya Simuni, Director of the PDMDC stated, “We at Northwestern Medicine look forward to remaining close partners with this organization, whose research funding tremendously benefits the Parkinson’s community.”
On April 26, 2014, the PRF will host the benefit gala “Night Out for Parkinson’s” at Riverside Receptions in Geneva. The DPF will participate in the gala, as well as play a role in the 2014 Sub-5 Ride.
An estimated 1.5 million Americans are living with Parkinson’s disease. The disease affects men and women alike, and its prevalence is considerably higher in the over-60 age group, although diagnosis at a younger age is increasingly common.
Davis Phinney Foundation
The Davis Phinney Foundation was created in 2004 to help people with Parkinson’s disease live well today. Its major initiatives include: the Every Victory Counts® manual, developed by movement disorder experts to provide practical ways to live well with Parkinson’s; The Victory Summit® symposia series, which brings experts into communities to share advances in science, care and to inspire those affected by the disease to take action; the Living Well Challenge™ educational webinar series; the “Parkinson’s Exercise Essentials” DVD and, the funding of research focused on exercise, speech and other quality of life therapies. Visit the website: www.davisphinneyfoundation.org
Paul Ruby Foundation for Parkinson’s Disease
The Paul Ruby Foundation for Parkinson’s Research is a local 501(c)(3) nonprofit founded in 2007 in Geneva, IL. Upon diagnosis with early-onset Parkinson’s Disease, Paul Ruby created the PRF with a mission to: find a cure for Parkinson’s; improve the quality of life for those afflicted; and create awareness about Parkinson’s. To date, more than $700,000 has been raised to pursue this mission. Website: www.paulrubyfoundation.org
Sub 5 Ride for Parkinson’s
The Sub 5 Ride for Parkinson’s was developed with the goal of supporting the efforts of the Paul Ruby Foundation for Parkinson’s Research. Since it’s inception in 2011, the event has raised (Dawn insert dollar amount) and awareness throughout the area and the cycling world. Website: www.sub5century.org.
Foundation auctions Hearts of Fire piece from State Street Jewelers
The foundation was given a Hearts of Fire diamond piece to auction at “A Night Out”. Read the article from the Chicago Tribune.
Foundation announces new event
The foundation held “A Night Out” at the Herrington on April 27. Read about the new event on Patch!
Foundation hits $500,000 mark donated to Parkinson’s research
The foundation hit the $500,000 with August’s Concert for a Cure event. Read the article on Patch.
Sixth Concert for a Cure on Tap
Concert for a Cure, in its sixth year, will be held on August 25th. This all day, family friendly event provides great entertainment while raising money to find a cure for Parkinson’s. Several youth have worked to help with this concert this year, including the Geneva band, Fargo.
Read the whole story on the Kane County Chronicle